Monday, September 14, 2015

Fight the Powers that Hack





To:  Dr. Jeffrey Michell
Cc:  Michelle St. Sauver, M.B.A.
        Governor Mark Dayton

I began asking for copies of my doctor’s reports in 2012 when I was still at Dr. Duthoy’s at Entira Family Clinics.  My bank account, home internet, facebook and email accounts had all been compromised (hacked) and I wanted to make sure my health record remained intact.  This was especially important because after reporting the hacking, instead of being taken seriously by law enforcement, my mental health was questioned.
I am in the midst of a legal challenge to fight any other diagnosis than my long standing ones of depression and anxiety for which I am accurately and appropriately medicated.  I keep a balanced life which consists of exercise, a healthy diet, work…(writing and performing Comedy at local clubs as my disabilities allow 3x a week)…and time spent with friends and my sons.  I manage my fibro-myalgia and migraines the best I can with Over the Counter pain medication, warm showers, cold packs and meditation.
But I need to make sure all the medical records about me are kept accurate.  Due to a disagreement with a family member, I was arrested in 2014.  My own public defender motioned to send me to the mental health and I wanted to hire my own lawyer.  I was found not to have an understanding of the court process at first and placed on civil commitment.  I hired my own lawyer, some of the charges were dropped and the civil commitment ended August 30, 2015.
In the process taking steps to protect myself from erroneous information about my mental status getting into my records I need write this letter.  I have numerous problems with my report from Dr. Michell from Monday, August 31.  His notes do not reflect our visit. 
Following is a list of errors:
1.        I do not just “believe” my clitoris was “excised” but Dr. Michell confirmed it was missing (see attached) on my first visit to him in front of his assistant Barb.   He then proceeded tell me that “Some cultures prefer it that way” and I said “Yes, but this was forced on me” and he said “Well, that’s assault.”
2.       It was not my previous practitioner who told me it was still “in situ” but an ER nurse while I was still bleeding somewhere around November 19, 2014.  She said I was just having post-menopausal bleeding and she could still see my clitoris.
3.       I was never given a “bi-polar label”.  I was prescribed Risperdal for possible “schizoaffective disorder” but it gave me terrible side effects and Dr. Michell took me off of it in May.  The Psych admit was due to a family matter when my mother had me arrested.
4.       Dr. Michell did not do ANY type of physical exam on August 31.
I have been having A LOT of problems with neck pain---my neck is not supple.
My range of motion is not good due to fibro-myalgia.
Fibro-myalgia and migraine are my chronic issues.  I am prone almost all day about 2 days a week from either a fibro flare or migraine headache…that’s up to 8 days a month….time I can’t use.

5.       I do NOT live in a Shelter.  In fact, Dr. Michell and I had a light, lovely conversation when he first sat down about how I was living in a Youth Hostel and I got to meet people from all over the World….and how I had stayed in Hostels in New York and Europe previously, and how this was much better than being homeless and the same price as the Salvation Army.  (I had previously sent a letter to him regarding this change of housing in May, as part of my “team” including social workers and my lawyer.)

6.        The Worst thing is the assessment of my mood I did NOT admit to sadness and anxiety most of the time.  I refute that I appeared anxious except for when I returned at the end after I saw that my “Viagra” prescription had been prescribed for pulmonary hypertension.  Instead of “decreased libido due to clitorectomy” and asked that it be changed for legal purposes…and Dr. Michell refused.   I had to send a copy of the office notes where he confirmed that he had seen my clitoris missing before he would change the prescription for a pre-authorization for my insurance.

When I first got to that office with Dr. Michell, we talked about the Youth Hostel, and how I was going to various clubs and performing Comedy at open mic nights….and how this was a really enjoyable thing in my life and I loved performing---that I had a gig at the House of Comedy at the Mall of America the next evening.

This is not a discussion of “sadness and anxiety”.  It was a conversation about my life and how I was Living it.  My speech was not pressured, my appearance not anxious and behavior not preoccupied.   I spoke about my life….and then my health, which has been affected by this enforced clitorectomy.

Most importantly, according to Dr. Michell’s previous exam…I did not have a “normal” vulvar exam.  It clearly states “Clitoris missing”

I think a good plan going forward would be to exercise my patient right to have Dr. Michell’s assistant in the exam room when we talk.   That way nothing will get miscommunicated.

I also think it’s important to have a medication prescribed for the condition a person is diagnosed for….I would not want a false diagnosis like “pulmonary hypertension” to get into my medical record….as well as I do not want my clitorectomy invalidated by being prescribed Viagra for another condition.

I would also appreciate filling out some type of “depression scale” at each visit…so there is a record of how I am doing.  (Previous clinic had this)

I was taught that I was a consumer of my health care….and that I had the right to ask questions about my medical records, make sure information was accurate and make sure I was receiving the highest quality health care possible.  No one else is going to be attentive to these details if I don’t…and any intelligent person with simple depression and anxiety who is not being Listened to, but instead being “Labeled” would follow the same process as I am.

Thank you for your time with this matter,


Linda Ophoenix

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